My Thoughts On The Outside Clinic – At Home Eye Tests Suitable For The Disabled

Today I want to share with you my experience of The Outside Clinic (a home-visiting optician service) because I think it’s a great option for the chronically ill. I’ve been putting off having my eyes tested for some time now because … Continue reading

Allodynia: My Clothes Hurt

I have been in a chronic pain flare up since the beginning of January – the longest and worst flare to date! The pain I have experienced in this flare has probably been the worst so far. One of the … Continue reading

Communicating Chronic Pain Through Art

All images are from communicatingchronicpain.org – submissions from everyday sufferers.  When I used to see a pain psychologist, she would often ask me to describe what my chronic pain would look like if it was visible – she was using a mindfulness technique … Continue reading

Birthday reflections

The last month or so has been a real toughie. No matter how much I rest I don’t seem to have any ‘good days’ at the moment. It was particularly frustrating on Saturday as it was my Birthday (I’m a Valentine’s … Continue reading

Hold onto hope

If you suffer from a chronic illness, I am sure you’re familiar with the question…’will I ever get better?‘ I have asked myself this question many times over the years I’ve been poorly. POTS has changed my life completely – … Continue reading

A look back at 2014 and hopes for 2015

2014 has been one of the toughest of my 25 years. I have been ill with postural orthostatic tachycardia syndrome since January and the journey to a diagnosis and acceptance was incredibly difficult. From January through to July – I … Continue reading

Being ill on top of being chronically ill

Monday afternoon/evening I started getting some new symptoms including widespread muscle aches, bone pain in my legs and hips, jaw pain, stomach upset, and chills/temperature. Having new symptoms on top of a chronic illness not only makes you feel even more … Continue reading

With gratitude, comes happiness

I was speaking to a friend the other day about gratitude. I was having a moment when I was appreciating how amazing it is to be able to see. I have many moments like this. My friend turned to me … Continue reading

A very exciting announcement…

I am so excited to finally be able to share this with you…it’s been something that I’ve had to keep secret for a little while now and it’s honestly something that I’ve been thinking about doing for a long time… … Continue reading